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NativeTongue
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Posted: Saturday July 24th, 2004 00:17 |
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does anyone know exactly what the situation is with bone marrow transplant in the black community.
why do we seem to have to go through the heartache of losing a young life without EVERYONE signing up for this.
i mean we r all on here talking sh*t about helping black people do this and that and this.well heres a way of doing something isnt it.
forget all the BS having a bone marrow donor card should be mandatory for us so called pan africanists shouldnt it??
just a thought.
http://www.blackchat.co.uk/theblackforum/forum35/3667.html
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Sage
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Posted: Saturday July 24th, 2004 16:04 |
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Let me bump this up.
Good topic NT.
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BlackBeauty
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Posted: Sunday July 25th, 2004 12:37 |
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I found some information on this website:
http://www.daintycrew.com/leukemia.htm
It is a UK based site (will look for a USA one later) and it explains what the aims of the ACLT (African Caribbean Lukemia Trust) society, what Lukemia is, what a bone marrow is and what a bone marrow transplant is.
What i thought was important was this:
The Society's Objectives
* Supporting sufferers of ACLT and any other bone marrow related illnesses such as Aplastic Anaemia, and their families by providing information, advice, moral support and assistance.
* To increase awareness and knowledge of ACLT amongst, carers, community groups and the general public.
At present out of a register of approximately 298,000 on the UK Bone Marrow Register approximately 11,000 are of African, African Caribbean or mixed parentage descent. This needs to be more in line with the proportion of black people in the United Kingdom. A figure of around 30, 000-40, 000 would be more fitting.
Havent checked the whole site, but they do let you know how u can become a donor!
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NativeTongue
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Posted: Sunday July 25th, 2004 16:15 |
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okay here is a list of the registration clinics:
Saturday 7th August, 10:00am till 6:00pm at The Hat Factory, 65-67 Bute Street Luton
Saturday 14th August, As part of Passionet LLP's 'Unify' Exhibition and Fair, 09:00am till 5:00pm on Level 5 at the Brixton Recreation Centre, 27 Brixton Station Road, Brixton, London, SW9 8QQ
Saturday 21st August, 10:00am till 4:00pm at the Handsworth Community Fire Station, 41 Rookery Road,Handsworth, Birmingham B21 9QU
Sunday/Monday 29th-30th August, 10:00 till 7:00pm at the Notting Hill Carnival, The Tabernacle, Powis Square, London W11
Sunday 5th September, 10:00 till 6:00pm at the "Aspirations Exhibition" at London Olympia, Hammersmith Road, London W14
Wednesday/Thursday 15th-16th September, 10:00 till 6:00pm at the Diversity Media Exhibition at Wembley Conference Centre, Stadium Way, Wembley
Thursday 23rd September, 10:00am till 6:00pm at The Cabinet Office, Room G44 & G45 Admiralty Arch (staff only)
Saturday 25th September, 10:00am till 6:00pm at the Arndale Shopping Centre, Luton, Bedfordshire LU1 2LJ
Friday/Saturday 12th-13th November, 10:00 till 7:00pm at the "Best of Nigeria Expo 2004" at the Wembley Conference Centre, Stadium Way, Wembley
get yr asses down there!!!
more info:
http://www.aclt.org/
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Sage
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Posted: Sunday July 25th, 2004 16:36 |
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@NT....
I feel your frustration. I really do. I am on the fence about anything being mandatory because when peeps in general feel they are being forced to do something it sometimes ends up have the opposite effect.
For some and not all, it will take having to experience a loved one or maybe themselves facing a life and death situation to truly understand what it is like to be in a situation that this young man finds himself in.
From exprience it is the worst position to be in...because as I have said you are virtually at the mercey of a stranger. The waiting itself takes it's toll...in fact it is right up there with having the disease. It's also emotionally and financially crippling.
Outside of appeals like this or first hand experience..I don't know what else it will take for others who have never exprienced anything like this to be or get interested.
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