Manchester Sickle Cell and Thalassaemia Centre
352 Oxford Road (Entrance on Denmark Road)
Manchester
M13 9NL
Tel: 0161-274-3322
Fax: 0161-273-7490
Dear Colleagues
Re: National Sickle Cell & Thalassaemia Awareness Day Celebrations
Date: Tuesday 25th July 2006
Time: 10:00am - 4:00pm
Launch: Celebrity launch 12:30pm
We are holding an open day as part of a National Awareness programme to raise the profile of these two disorders. This celebration is also in conjunction with PPI (Public Patient Involvement), along with raising awareness of the benefits of being a Bone Marrow donor, particularly amongst the Black & Ethnic Minority community.
Sickle cell and thalassaemia are inherited blood disorders that affect the haemoglobin in the red blood cells. It may be passed on to children if both parents are carriers and this result in severe clinical symptoms. Most notable are chronic anaemia, stroke, high risk of infection and the painful crisis which sickle cell sufferers have to endure. Those individuals with thalassaemia major have to live with the difficulties associated with being transfusion dependant. In Britain, sickle cell and thalassaemia affects people primarily of African Caribbean descent, Greeks, Turks, Italians, Eastern Mediterraneans, Asians and also Europeans.
The open day will offer an opportunity to learn about all aspects of sickle cell and thalassaemia. It is aimed at the following groups:
The general public
Health and non health professionals
Service users
Patients
Educational establishments
Social services
Probation services
Housing and community organisations
There will be poster displays, audio-visual aids, and a range of literature, interactive programmes and practical demonstrations with experts in the field at hand to answer any questions the general public may have.
The activities will include:-
- health & happiness presentation.
- healthy juicing demonstration and sampling
- NOWGEN interactive stalls.
- presentation of sickle cell & being a donor.
- Musical performances/dance.
- free advice on tracing your family tree.
- a variety of health stalls.
____________________
____________________
Click here for your Black Profile
|
