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Lupus -share your comments
 Moderated by: Saida.M, safetyblitz, Raven, Miss Brighter Days, LadyDay, Kunjufu, Kibibi, Happiness, Dillinger, Breadfruit, Backatya  

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wvr
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 Posted: Thursday June 10th, 2004 22:23

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Hi,

I'm Dee, a London based writer in my late twenties.  That's enough about me, I want to hear about you.


I am currently preparing a magazine article on Systemic Lupus Erythematosus (SLE). The readership is comprised of mainly black women living in the UK between the ages of 16 and 40. If you fit into this category I am very interested in reading your comments. How has lupus affected your life and the lives of family and friends? What positive things (if any) have come out of your experience i.e. what hope can you offer to those newly diagnosed with the disease? What has been the hardest thing to cope with? I am looking for a range of different comments from a few different sufferers to demonstrate the diverse effects of the disease. I have a degree in medicine and so can relate the medical/scientific aspect but what better way to get a message across than to give the article a human touch from those who know lupus best. That’s where you come in. All names will be changed in the article to protect identities. There is no payment involved as I am providing the article free of charge but this is an opportunity to raise awareness. If you want the chance to have your voice heard please post your comments by Monday 14 June.

Much appreciated,

Deeblkhailer



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 Posted: Thursday June 10th, 2004 22:38

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@ Dee

Hi and welcome...you don't have to post this in more than one forum believe me it will get seen in the open forum, okay?. Thanks.



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wvr
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 Posted: Thursday June 10th, 2004 22:51

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O.K. Thanks for the advice about posting Ashanti.  I just wanted to cover the main bases which is why I put it in the forums that sufferers of the disease are most likely to surf.



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 Posted: Monday January 16th, 2006 10:47

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Hiya people just wanted to re open this topic. Wanted to find out if anyone has lupus or thinks that they do.

If anyone has been diagnosed with a connective tissue disease and what there views are on treating this?

Why do these illness effect black people?

thanks



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